When I was pregnant with Cesalie I found a baby/pregnancy website where pregnant women go on and talk about their pregnancies with other pregnant moms week by week. Then after you have the baby you can share your babies experiences month by month. You can create your own VIP page and it's really a lot of fun. They have a site search and every once in a while I will go on the site search and type in Down syndrome. A lot of the expectant mom's are having Nuchal scans, CVS's, Ultrasounds and Amnios. I just feel like if I found someone who's baby is going to be born w/ Down syndrome, I could send them a message and tell them about my Rylie and offer support to them. Actually I have done this! Anyway, today I decided to do a site search on Down syndrome and this is what I found:
had a nuchal scan..thats when they 1st thought my baby mght have a chromosome problem. and sure enough i got the cvs and the baby has down syndrome. its so0 depressing reading about how the baby looks right now. im terminating the pregnancy. i dont want to but im so0 young and i think its for the best. i think its the right decision for me. i feel horible and im extremely depressed. 2 miscarriages and now this..hope you all have healthy and happy pregnancies and never have to go thru nething like im goin thru. baby dust to all!
By the time I went to this persons VIP page(which was as soon as I read this) I realized she had already terminated the pregnancy. I am shocked and saddened? WHY? Because, apparently if you are going to have a child like Rylie, then that child does not deserve to live. Why didn't anyone in the medical field direct this poor girl to another parent of a child with Down syndrome. Why couldn't someone in the medical field convince this poor girl that people with Down syndrome can do things like walk, talk, run, learn, have fun, enjoy their families, make friends, fall in love, get married, swim, ride horses, play t- ball, play soccer, go to dance class, gymnastics and countless other things. Why didn't someone tell this poor girl that children with Down syndrome don't suffer from some horrible disease. Down syndrome is not a disease by the way.
Now, believe me ,I know that there are children with Down syndrome who have multiple health issues. I know there are children with Down syndrome who are not verbal and maybe will never walk. But does that mean their life is not worth living? Absolutely not! Their parents love them just the same and know they are blessed, despite health issues. Any child can be born healthy and then unfortunately can end up getting sick, or having a tragic accident that could leave them with brain damage. Would anyone then say, this child who was once perfect and healthy should no longer live. Of course nobody would ever say that! Why do some people think only healthy, perfect babies have the right to be born. I'm so sick of it. Some people in this world think a person like Rylie shouldn't be born. People need to be informed. Our blogs need to reach all types of people, not just those of us who have kids with Down syndrome. Doctors need to send the expectant parents to us , not the genetic counselors whose job it is to tell the expectant parent how much time they have left to get an abortion. By the way, I know there are good doctors and counslers out there, who do encourage the parents and give them the positives, but since 90% of Down syndrome fetuses are aborted, I don't think there are too many. Just my opinion.
Expectant parents need to be informed of the positives. And, yes they should also be aware of the health issues that may or may not arise. But they shouldn't be pressured or talked into an abortion just because the baby has an extra chromosome. I wish these doctors and genetic counselors would push for ADOPTION. There are hundreds if not thousands of people out there who would love to adopt a child with Down syndrome.
I don't think there is anything wrong with having Nuchal scans, ultrasounds or amnio's. I had the Nuchal scan when I was pregnant with Cesalie and ultrasounds with all three of my girls. I just don't think these test should be used as ELIMINATION tools.
Recently Alaskan Governor Sarah Palin gave birth to a baby with Down syndrome. You can read all about it by clicking here. I love what the family said in a press release:
Trig is beautiful and already adored by us. We knew through early testing he would face special challenges, and we feel privileged that God would entrust us with this gift and allow us unspeakable joy as he entered our lives. We have faith that every baby is created for good purpose and has potential to make this world a better place. We are truly blessed."
That is music to my ears. And that is the whole point of this post, that every baby is created for good purpose.