Wednesday, October 31, 2007

My little pumpkin

He was thinking of me

Rylie being born with Down syndrome was a shock to me. I had no idea, no gut feelings while pregnant, NOTHING. Pretty soon I will be posting about my birth story and the following days after she was born. My faith in God is what got me through those days -It is God who gets me through all my days.Many bible verses comfort me when I try to make sense of Down syndrome and other disabilities. Here is one of my favorites:

John 9:1-3 AND as Jesus passed by, he saw a man which was blind from birth. 2 And his disciples asked him, saying, Masrer, who did sin, this man, or his parents, that he was born blind?3 Jesus answered Neither hath this man sinned, nor his parents: but that the works of God should be manifest in him.

Blindness, Down syndrome. any disability -It is awesome to know that Jesus was thinking of us parents and our children 2000+ years ago.

Monday, October 29, 2007

On her best -worst behavior

Rylie is a great kid. She is so funny and always keeps us laughing. She is very independent. She has a great imagination-She is just cute as can be----However she does not fall in to that stereotypical always happy, so friendly- so sweet Ds catagory.Rylie has some behavior problems. She won't hold your hand, You can't tell her no just once, She cries when she doesn't get her way, she is always into something-She will never just sit still,.So anyway we are in the process of getting her a behavioral specialist.The behavior specialist came to the house this morning for an evaluation . I am proud to say Rylie demonstrated all these bad behaviors for her perfectly. Needless to say her services should be starting very soon.

Friday, October 26, 2007

Karlies post

Tonight Karlie told me she would like to write something on my blog about being a big sister. I told her to write it down on paper then I would type it onto my blog

So here it goes straight from Karlies heart......
Hi I'm Karlie. It is nice having two sisters but sometimes it is hard.
I feel fine that Rylie has Down syndrome. It is hard . Rylie can be bad sometimes, but I still love her. Cesalie is cute but sometimes she cries too much and I can't stand it. But no matter how much things happen between us I still love my little sisters.

Down syndrome Awareness Month

Rylie is almost 5 years old and I just now found out that October is Ds awareness month. Of course having a child with Ds makes you aware of Ds all the time. When she was born I knew absolutely nothing, and I do mean nothing about it. What I am aware of now is that babies born w/ Ds are the same as any baby. They eat, cry, sleep and are just as cute as any baby. I regret I didn't spend those first few days rejoicing in having a new baby the way I did with my other kids-I was too busy being scared to death and feeling sorry for myself. Plus it didn't help that their were some medical issues to deal with. Family and friends were very helpful during this time-Everyone congratulated us and offered so much help. I will always be grateful that nobody acted as though Rylie being born with Ds was a bad thing. I had to be reminded that she was still my daughter and nobody would treat her differently, and nobody ever has. Children with Down syndrome will reach all their milestones ( it may take alittle bit longer), they will laugh, cry, feel joy, love, hope, be silly, get mad, be sad, just like any child. -Oh and they will misbehave-Rylie reached that milestone right on time.LOL!!

Thursday, October 25, 2007

New To This

Hi my name is Valerie. I am a mother and wife. I have a wonderful husband and 3 Beautiful daughters. Karlie is 9, Rylie is 4 and Cesalie is a newbie (4 monthes old). Rylie has Down syndrome. She is doing very well. When she was born 4 1/2 years ago there were no blogs like this for me to read other peoples stories. All I ever found on the internet was a bunch of scary medical stuff. I hope my stories will inspire other parents who have children with Down syndrome or parents who just got a diagnosis. Please stay tune and Welcome to my blog.