tag:blogger.com,1999:blog-29658400002093205042024-03-05T22:26:34.812-08:00RYLIErylie's momhttp://www.blogger.com/profile/06245477380127502409noreply@blogger.comBlogger296125tag:blogger.com,1999:blog-2965840000209320504.post-74924370502785961782013-05-25T16:02:00.000-07:002013-05-25T16:06:07.131-07:00Rylie and Libby<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjuEIraCUcy4G8FozI5fyOoC13_Qa3rdAyoGLcyXK34BFrv3ABEJshu2GAC8NlYLtIVGj5GMk9JNc2g6HSPYWiUeBS6X6HjPz8pWjYkBTOMZ1qn190qjhqhOd5Nd4HdPLel8R01Zr2kpW-Q/s1600/rylieandcat.mp4" imageanchor="1"><img afdnqxl5hi="" border="0" bp.blogspot.com="" c3uun1o84="" ca="" http:="" imageanchor="1" n8ox6pzx2o="" rylieandcat.mp4="" s1600="" src="http://2.bp.blogspo<a href=" /><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjMNUCouwBzoZWRoW8WHasoYAWWgzPNCbTkzZ501KvmyiuO1D0kOgYlguwZ54XMgyfnk2fU2qR8toSdfj5VQEXFx8Al_88FG6eu9MXJB7VhHK23ovXKnBInuVkOrmkHQCjs8SoekNnFHzun/s320/rylieandcat.mp4" /></a>t.com/-LNsJzPE6ELw/UaFCrsHZ6bI/AAAAAAAABbk/aSj8rnDD3Kc/s320/rylieandcat.mp4" />rylie's momhttp://www.blogger.com/profile/06245477380127502409noreply@blogger.com0tag:blogger.com,1999:blog-2965840000209320504.post-15595112962376237102012-03-05T16:34:00.000-08:002012-03-05T16:35:06.413-08:00http://archphila.org/archbishop-chaput/statements/threadforweavingjoyl.htmrylie's momhttp://www.blogger.com/profile/06245477380127502409noreply@blogger.com0tag:blogger.com,1999:blog-2965840000209320504.post-85426166279142474672011-11-09T04:38:00.000-08:002011-11-09T04:40:32.172-08:00My TV appearance in NYC WITH THE WONDERFUL Kim Adams from Gifts From The Heart For Downshttp://abclocal.go.com/wabc/video?id=8397648<object id="otvPlayer" width="400" height="268"><br /><param name="movie" value="http://cdn.abclocal.go.com/static/flash/embeddedPlayer/swf/otvEmLoader.swf?version=&station=wabc§ion=&mediaId=8397648&cdnRoot=http://cdn.abclocal.go.com&webRoot=http://abclocal.go.com&configPath=/util/&site=" ></param><br /><param name="allowScriptAccess" value="always"></param><br /><param name="allowNetworking" value="all"></param><br /><param name="allowFullScreen" value="true"></param><br /><embed id="otvPlayer" width="400" height="268" type="application/x-shockwave-flash"<br /> allowscriptaccess="always" allownetworking="all" allowfullscreen="true"<br /> src="http://cdn.abclocal.go.com/static/flash/embeddedPlayer/swf/otvEmLoader.swf?version=&station=wabc§ion=&mediaId=8397648&cdnRoot=http://cdn.abclocal.go.com&webRoot=http://abclocal.go.com&configPath=/util/&site="><br /></embed><br /></object>rylie's momhttp://www.blogger.com/profile/06245477380127502409noreply@blogger.com0tag:blogger.com,1999:blog-2965840000209320504.post-42250263341248496212011-09-15T04:22:00.001-07:002011-09-15T04:23:39.785-07:00First day of 2nd grade.<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgR_0PxyK1FkxGb-Dz6N-w1bL8ePegum7Ghj_gz6-oOv_rT5Qvo1fwuoJEE09n8_t0D9bZXAuxsFPgOO0UdB3fwJc3po8MIy2ZJJM5YynKqua17UdmkSPPhc_qeMkGyAdi3cyENhsqqhMGv/s1600/008.JPG"><img style="display:block; margin:0px auto 10px; text-align:center;cursor:pointer; cursor:hand;width: 400px; height: 300px;" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgR_0PxyK1FkxGb-Dz6N-w1bL8ePegum7Ghj_gz6-oOv_rT5Qvo1fwuoJEE09n8_t0D9bZXAuxsFPgOO0UdB3fwJc3po8MIy2ZJJM5YynKqua17UdmkSPPhc_qeMkGyAdi3cyENhsqqhMGv/s400/008.JPG" border="0" alt=""id="BLOGGER_PHOTO_ID_5652545482306769826" /></a>rylie's momhttp://www.blogger.com/profile/06245477380127502409noreply@blogger.com0tag:blogger.com,1999:blog-2965840000209320504.post-19135775972646065712011-06-20T09:32:00.000-07:002011-06-20T09:40:04.497-07:00Billy Gardell<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjh5_-mtkAc30VK9g3ElapCJCYrGhmu5dzYnCYlaJc2WE7TlN1vbQCYZzW4WpQPqFELMuMfmk-1bZzX9nMM9rprTp0gvDJVL3zxmYZ3DMpB9qpzl48o4WP4JAte5kXZGEFPRblzPJLK-9e1/s1600/057.JPG"><img style="display:block; margin:0px auto 10px; text-align:center;cursor:pointer; cursor:hand;width: 400px; height: 293px;" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjh5_-mtkAc30VK9g3ElapCJCYrGhmu5dzYnCYlaJc2WE7TlN1vbQCYZzW4WpQPqFELMuMfmk-1bZzX9nMM9rprTp0gvDJVL3zxmYZ3DMpB9qpzl48o4WP4JAte5kXZGEFPRblzPJLK-9e1/s400/057.JPG" border="0" alt=""id="BLOGGER_PHOTO_ID_5620341917086331922" /></a><br />Vinnie and I went to the Keswick the other night to see Billy Gardell from "Mike and Molly" He was absolutely hilarious! We had the best time and Obviously we got to meet him after the show. He is such a nice guy!rylie's momhttp://www.blogger.com/profile/06245477380127502409noreply@blogger.com0tag:blogger.com,1999:blog-2965840000209320504.post-52055452210389547032011-06-01T11:49:00.005-07:002011-06-01T11:50:53.321-07:00Wordless Wednesday<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgZdBkNiGtpIgdbjoXCnkadj5KSnfzc2x2lxZXku5m2dwM9pMuvMCoQP2VixuDZloA3zEOw1nqW75b2ZGs5WpZMzsgRk_kMIGAvSJnys1-7y_1v3KkI2_P_kf_iyu0FUrq6cvwFMVE38Y5P/s1600/101.JPG"><img style="display:block; margin:0px auto 10px; text-align:center;cursor:pointer; cursor:hand;width: 400px; height: 300px;" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgZdBkNiGtpIgdbjoXCnkadj5KSnfzc2x2lxZXku5m2dwM9pMuvMCoQP2VixuDZloA3zEOw1nqW75b2ZGs5WpZMzsgRk_kMIGAvSJnys1-7y_1v3KkI2_P_kf_iyu0FUrq6cvwFMVE38Y5P/s400/101.JPG" border="0" alt=""id="BLOGGER_PHOTO_ID_5613325692662673298" /></a>rylie's momhttp://www.blogger.com/profile/06245477380127502409noreply@blogger.com1tag:blogger.com,1999:blog-2965840000209320504.post-23058155354873721462011-05-23T13:43:00.000-07:002011-05-23T14:02:01.738-07:00Gifts from the Heart for Downs...You can help!I don't post much on this blog anymore, but I know I still have readers, so I'm here to ask you for a favor.<br /><br />Actually the last time I posted I told you all about Rylie's amazing night meeting Miranda Cosgrove. Rylie, along with me, Vinnie and her sisters received a limo ride, dinner at the Cheescake Factory along with meeting Miranda and great seats to her concert. This was all because of Kimberley Adams from <a href="http://giftsfromtheheartfordowns.blogspot.com/">Gifts From the Heart </a>For Downs! She worked hard to make Rylie's wish come true and she is constantly working hard so that other people with Down syndrome can have their wishes come true.<br /><br />Back to that favor......Do you have $1.00 you can spare. That is all Kimberley is asking for. If everyone reading this gives just one dollar and ask everyone they know to give a dollar, she will be able to do even more wonderful things for people w/ Down syndrome who are requesting wishes.(and if you can give even more then a dollar that would be super:)<br /><br />Please head on over to <a href="http://giftsfromtheheartfordowns.blogspot.com/">Kimberley's blog </a>and you can donate right through her chip in button. THANKS!rylie's momhttp://www.blogger.com/profile/06245477380127502409noreply@blogger.com0tag:blogger.com,1999:blog-2965840000209320504.post-71600242683021866602011-02-07T17:45:00.000-08:002011-02-07T17:46:48.731-08:00Meeting iCarly video<object width="425" height="344"><param name="movie" value="http://www.youtube.com/v/jD0EiLiDVdE?hl=en&fs=1"></param><param name="allowFullScreen" value="true"></param><param name="allowscriptaccess" value="always"></param><embed src="http://www.youtube.com/v/jD0EiLiDVdE?hl=en&fs=1" type="application/x-shockwave-flash" allowscriptaccess="always" allowfullscreen="true" width="425" height="344"></embed></object>rylie's momhttp://www.blogger.com/profile/06245477380127502409noreply@blogger.com7tag:blogger.com,1999:blog-2965840000209320504.post-73063086138455068042011-02-07T17:07:00.000-08:002011-02-07T17:30:00.668-08:00Rylie's wish comes true and so much more!<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhbTXCO-lNYldvenkX5jn7R1qBb6E-4q7HZxJyvqlT8zQTvm3tU8dwiRRRZSJbT8Q-PrkTygAWi6ut7wtXSlh7ABPAUu2HwSmaWOofgWYmKzTzU_1uRnRPjzzz25mRd5-X4U3EhMKwCf1HX/s1600/DSCN0051.JPG"><img style="display:block; margin:0px auto 10px; text-align:center;cursor:pointer; cursor:hand;width: 400px; height: 300px;" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhbTXCO-lNYldvenkX5jn7R1qBb6E-4q7HZxJyvqlT8zQTvm3tU8dwiRRRZSJbT8Q-PrkTygAWi6ut7wtXSlh7ABPAUu2HwSmaWOofgWYmKzTzU_1uRnRPjzzz25mRd5-X4U3EhMKwCf1HX/s400/DSCN0051.JPG" border="0" alt=""id="BLOGGER_PHOTO_ID_5571124155366174178" /></a><br /><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEggqU5Bo5WFWvNE8C74tZeQchlkxnE59mfiWC7QDuOn_lyDss-A2HstiDjKAO4SvEV6zCIpO0hVcV9rhC7jJnLxHcjKncHAy1GpYNQJlxXxou7hVMx14ppDUnh8lArgoIhYFGHSUTJ0pSCQ/s1600/DSCN0058.JPG"><img style="display:block; margin:0px auto 10px; text-align:center;cursor:pointer; cursor:hand;width: 400px; height: 300px;" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEggqU5Bo5WFWvNE8C74tZeQchlkxnE59mfiWC7QDuOn_lyDss-A2HstiDjKAO4SvEV6zCIpO0hVcV9rhC7jJnLxHcjKncHAy1GpYNQJlxXxou7hVMx14ppDUnh8lArgoIhYFGHSUTJ0pSCQ/s400/DSCN0058.JPG" border="0" alt=""id="BLOGGER_PHOTO_ID_5571124138802657218" /></a><br /><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiE1nC84GeiYGv3gFHrwUqMy3mkKoQm0Ruadx4hDfp7fB0Ifu__-R9PcCX_dTcBwvG71WUlI2IX0yI_fCh5JP_lEZUc4pFFXm-uOvvGp9pAZ6hri4zFfAnAdj2rqHOyBAFVN64cZaZKJg4d/s1600/DSCN0061.JPG"><img style="display:block; margin:0px auto 10px; text-align:center;cursor:pointer; cursor:hand;width: 400px; height: 300px;" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiE1nC84GeiYGv3gFHrwUqMy3mkKoQm0Ruadx4hDfp7fB0Ifu__-R9PcCX_dTcBwvG71WUlI2IX0yI_fCh5JP_lEZUc4pFFXm-uOvvGp9pAZ6hri4zFfAnAdj2rqHOyBAFVN64cZaZKJg4d/s400/DSCN0061.JPG" border="0" alt=""id="BLOGGER_PHOTO_ID_5571124139920250754" /></a><br /><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEicAs0HkvcCnqxcWaGJ6X9x0x4Ewj7NbPBl3hoRqNlUphv1TybmyAp9l5mcNusrNbGREN9ZbocLHp2cX9sxmba_h9s4FNZ0NTpVBGkCz5tjqIfIGICbN7YrWZMtwIsRAEyTq-AntOFcfI6T/s1600/DSCN0062.JPG"><img style="display:block; margin:0px auto 10px; text-align:center;cursor:pointer; cursor:hand;width: 400px; height: 300px;" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEicAs0HkvcCnqxcWaGJ6X9x0x4Ewj7NbPBl3hoRqNlUphv1TybmyAp9l5mcNusrNbGREN9ZbocLHp2cX9sxmba_h9s4FNZ0NTpVBGkCz5tjqIfIGICbN7YrWZMtwIsRAEyTq-AntOFcfI6T/s400/DSCN0062.JPG" border="0" alt=""id="BLOGGER_PHOTO_ID_5571124132366429970" /></a><br /><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjoOWOLOfjdjCVyza767CJ6cpp9WgZF0Y2G-X5O8f_84Y6qH-yMJOh65IxVEiSgvDsSHutsU7ttOf-72a4hXRbjXfs9IXC7rDqcqpgw38KwNa1EWOnUKlrPj_2ePQBbinGpUnfYUuH8FlUU/s1600/DSCN0073.JPG"><img style="display:block; margin:0px auto 10px; text-align:center;cursor:pointer; cursor:hand;width: 400px; height: 300px;" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjoOWOLOfjdjCVyza767CJ6cpp9WgZF0Y2G-X5O8f_84Y6qH-yMJOh65IxVEiSgvDsSHutsU7ttOf-72a4hXRbjXfs9IXC7rDqcqpgw38KwNa1EWOnUKlrPj_2ePQBbinGpUnfYUuH8FlUU/s400/DSCN0073.JPG" border="0" alt=""id="BLOGGER_PHOTO_ID_5571124127908333074" /></a><br /><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEg0gsJFnFRtRd6KDQmvAoo-x1WULhITGMHLRNAt7uwVwPnWRvXPFF9YwzPRhw50CC8j38I-06TB7o_NEA1d6bD7ILbIIjq5NzRcJI583FIw-Lc-ABNP2Fo1vC9K_fo5PvS2i_Aw3VnBk16J/s1600/DSCN0086.JPG"><img style="display:block; margin:0px auto 10px; text-align:center;cursor:pointer; cursor:hand;width: 300px; height: 400px;" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEg0gsJFnFRtRd6KDQmvAoo-x1WULhITGMHLRNAt7uwVwPnWRvXPFF9YwzPRhw50CC8j38I-06TB7o_NEA1d6bD7ILbIIjq5NzRcJI583FIw-Lc-ABNP2Fo1vC9K_fo5PvS2i_Aw3VnBk16J/s400/DSCN0086.JPG" border="0" alt=""id="BLOGGER_PHOTO_ID_5571123473825381970" /></a><br /><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiUwwPeiNG1xNHu5HTDR5JVkx-LCeMSyt0BjAOmjX6apc5cLw1tqkviz0Gz4vGZmkizvAGJW74yr7GDzGbCtxCVQukp6WqTGFqqHjhsf8ZcTo2RpTI4OENdSZ1Mgd9bnT3RXeu3tk91UkXT/s1600/DSCN0090.JPG"><img style="display:block; margin:0px auto 10px; text-align:center;cursor:pointer; cursor:hand;width: 400px; height: 300px;" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiUwwPeiNG1xNHu5HTDR5JVkx-LCeMSyt0BjAOmjX6apc5cLw1tqkviz0Gz4vGZmkizvAGJW74yr7GDzGbCtxCVQukp6WqTGFqqHjhsf8ZcTo2RpTI4OENdSZ1Mgd9bnT3RXeu3tk91UkXT/s400/DSCN0090.JPG" border="0" alt=""id="BLOGGER_PHOTO_ID_5571123472579823730" /></a><br /><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEisx7z5QngNMg487SIbJN1FgT0dHjHk-WGfkslD_W71oiVRE_udN7dXB9RV1Jz2d4K38BXfTbUMVLdvIqbMt_yHgccPjZ89WsBkIXrNFOgakbFlap5ljw2NDkUQ3p4GprHhvx2XqK71GE10/s1600/DSCN0167.JPG"><img style="display:block; margin:0px auto 10px; text-align:center;cursor:pointer; cursor:hand;width: 400px; height: 300px;" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEisx7z5QngNMg487SIbJN1FgT0dHjHk-WGfkslD_W71oiVRE_udN7dXB9RV1Jz2d4K38BXfTbUMVLdvIqbMt_yHgccPjZ89WsBkIXrNFOgakbFlap5ljw2NDkUQ3p4GprHhvx2XqK71GE10/s400/DSCN0167.JPG" border="0" alt=""id="BLOGGER_PHOTO_ID_5571123460808135026" /></a><br /><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgb0V5bjw1hscf8QHP2_iFMWDfPNv0q5l3wnOc8i2bcs8mAU_qAE8kUu0Xp2A8S25QPa_608xrgZAoq3SSDn_dG6tW9JHlMRvQqX9odCMZwvR57w_0hoi2PSl8Uaihq18juZqzbYB0Xgz2L/s1600/DSCN0194.JPG"><img style="display:block; margin:0px auto 10px; text-align:center;cursor:pointer; cursor:hand;width: 400px; height: 300px;" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgb0V5bjw1hscf8QHP2_iFMWDfPNv0q5l3wnOc8i2bcs8mAU_qAE8kUu0Xp2A8S25QPa_608xrgZAoq3SSDn_dG6tW9JHlMRvQqX9odCMZwvR57w_0hoi2PSl8Uaihq18juZqzbYB0Xgz2L/s400/DSCN0194.JPG" border="0" alt=""id="BLOGGER_PHOTO_ID_5571123459679185378" /></a><br /><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjeCEMwwkLFXbR8IqSfrYBhC6o-8_AqZSGm5Ru4HME6UBbiAbtt9m3VOowCJ2IsNdYtwFdjpNDmE4I-XrB5GzzyDq3_zLvvKoJPW3RyTWdHUvc7TInfKXYxQ9rRW367BrjZQM1FKIpyma1l/s1600/DSCN0135.JPG"><img style="display:block; margin:0px auto 10px; text-align:center;cursor:pointer; cursor:hand;width: 400px; height: 300px;" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjeCEMwwkLFXbR8IqSfrYBhC6o-8_AqZSGm5Ru4HME6UBbiAbtt9m3VOowCJ2IsNdYtwFdjpNDmE4I-XrB5GzzyDq3_zLvvKoJPW3RyTWdHUvc7TInfKXYxQ9rRW367BrjZQM1FKIpyma1l/s400/DSCN0135.JPG" border="0" alt=""id="BLOGGER_PHOTO_ID_5571123451480592498" /></a><br />Yesterday was Rylie's big day! Thank you so much to Sterling Limousine, Cheesecake Factory and especially Kimberly Adams from Gifts From the Heart for Downs.<br /><br />At 3:45 We were surprised with a LIMO waiting outside our house. The limo then drove us over to the Cheescake Factory for an awesome dinner. This was another fabulous surprise. Vince knew all about the limo and special dinner, but along with Kimberly they were keeping it a secret!<br /><br />After dinner we went to the Keswick Theatre to meet Miranda Cosgrove and see her awesome concert! I think a lot of people at the theatre thought we were Miranda Cosgrove when we pulled up in our fancy limo! SO MUCH FUN!!!!!!!!<br /><br />Rylie was so excited! She loves "iCarly". Meeting her was really a dream come true. <br />Miranda was so sweet and so pretty in person. She signed some autographs for us too.<br />The concert was fantastic and we had such great seats.<br /><br />I will be forever grateful to Gift from the Heart for Down's for making my little girls dream come true. It was also super sweet that Karlie and Cesalie got to join Rylie for all the fun.rylie's momhttp://www.blogger.com/profile/06245477380127502409noreply@blogger.com0tag:blogger.com,1999:blog-2965840000209320504.post-23183158041162636622011-01-06T04:05:00.000-08:002011-01-06T04:07:14.886-08:00Happy 8th Birthday Rylie!<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEh0scqp6QfPX8V_zLWP0mHcRfbGnvofv-O1dkIn22xz_Xpa4Hyt6oFXL02wiBq3y0nAVQmmih2G4vMn_V0NT0PR72MIi1Omcr76qsq6CzPGtkKqEh4vDhTS75sn8k8g2LjQ4Q5cKAcUDq6C/s1600/70758_1403901392_322713_n.jpg"><img style="display:block; margin:0px auto 10px; text-align:center;cursor:pointer; cursor:hand;width: 200px; height: 182px;" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEh0scqp6QfPX8V_zLWP0mHcRfbGnvofv-O1dkIn22xz_Xpa4Hyt6oFXL02wiBq3y0nAVQmmih2G4vMn_V0NT0PR72MIi1Omcr76qsq6CzPGtkKqEh4vDhTS75sn8k8g2LjQ4Q5cKAcUDq6C/s400/70758_1403901392_322713_n.jpg" border="0" alt=""id="BLOGGER_PHOTO_ID_5559043252188040594" /></a>rylie's momhttp://www.blogger.com/profile/06245477380127502409noreply@blogger.com1tag:blogger.com,1999:blog-2965840000209320504.post-18971322893071866312010-12-20T15:03:00.000-08:002010-12-20T15:57:57.943-08:00Wishes do come true!IN 5,4,3,2,1<br />I know, you see<br />Somehow the world will change for me and be so wonderful..........................<br />Do you know what show that's from?<br /><br />iCarly on Nickelodeon!!! Rylie's favorite show! Rylie is pretty much obsessed with iCarly. She knows all of her songs and never ever misses an episode. She comes home from school each day and takes off her coat and shoes , as fast as she can so she can run to her room and turn on iCarly. Vince and I are amazed at how she watches the show and laughs at all the funny parts. It's great to see how she understands and gets it! We are also happy to see how she is watching an age appropriate show and not still watching shows like "Barney"! We love watching her dance and sing along with the show! She just loves the theme song! It never gets old for her and she belts it out as loud as she can. <br /><br />When I found out a few weeks back that iCarly (Miranda Cosgrove) was on concert tour and going to be at the Keswick theatre, which is practically in walking distance to us I immediately thought how much Rylie would LOVE to go see her. I had remembered <a href="http://http://sarahely8989.blogspot.com/">Sarah</a> posting on her blog about a neat organization called Gifts from the Heart for Downs. They grant wishes to people with Down syndrome! Soooo I went on <a href="http://giftsfromtheheartfordowns.org/wishes.html">their website</a> and sent an email explaining how much Rylie Loved Miranda Cosgrove and how she would love to go to her concert and possibly even meet her. Kim from Gifts from the Heart for Downs called me right away! She was so excited that I contacted her and right away she started making contacts so that Rylie's wish could come true!<br /><br /> Head on over Gifts From the Heart For Downs for the <a href="http://giftsfromtheheartfordowns.blogspot.com/2010/12/announcement-is-here-how-exciting-is.html">official announcement</a>! We are forever grateful. Kim, I can't thank you enough for making Rylie''s wish come true.rylie's momhttp://www.blogger.com/profile/06245477380127502409noreply@blogger.com0tag:blogger.com,1999:blog-2965840000209320504.post-63412811043599968492010-12-09T15:56:00.001-08:002010-12-09T15:56:40.504-08:00Vote!<iframe src="http://www.refresheverything.com/widget/?i=5046d284-08d1-102e-be05-0019b9b9e205&w=250" width="250" height="255" scrolling='no' frameborder='0'></iframe>rylie's momhttp://www.blogger.com/profile/06245477380127502409noreply@blogger.com1tag:blogger.com,1999:blog-2965840000209320504.post-91618921285655618742010-10-19T15:14:00.000-07:002010-10-19T15:45:47.642-07:00Girl Scouts and Daisies<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEj2ZYBE1ltCgdzaMJ1riArOHyQsOp1A5OahovQgjqmVl5nqzFIjOBHVvcwRpZkN4ySWmbQbRs57GEtjRIYZyopD655Hra2ZHJX3ynykUN3Y_YePkmToG_k6LFaJZrBEgyEiUoX90p7zNEbK/s1600/promise_2.gif"><img style="display:block; margin:0px auto 10px; text-align:center;cursor:pointer; cursor:hand;width: 400px; height: 345px;" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEj2ZYBE1ltCgdzaMJ1riArOHyQsOp1A5OahovQgjqmVl5nqzFIjOBHVvcwRpZkN4ySWmbQbRs57GEtjRIYZyopD655Hra2ZHJX3ynykUN3Y_YePkmToG_k6LFaJZrBEgyEiUoX90p7zNEbK/s400/promise_2.gif" border="0" alt=""id="BLOGGER_PHOTO_ID_5529892033209552642" /></a><br />Rylie joined Daisies. Today was her very first meeting. The meetings are after school right across from her classroom. I met her there and she was already sitting in the circle with her friends eating a snack. Two little girls from her class are in Daisies with her. These little girls looooove Rylie and make such a fuss over her. They love to help her and everyone wants to sit next to her. I was just there observing. The troop leader thought Rylie would be fine next time without me having to be there. So it's all good!<br /><br />Karlie also had her first Girl Scout meeting today. She loves it and is so excited about all the activities they have lined up this year.<br /><br />I'm just not thrilled about all the cookies we're going to have to sell. I'm not big into fundraisers. I guess I have to get into it though, because there seems to be a lot of them in Girl Scouts and Daisies. <br /><br />I'm very impressed with the whole Girl Scout organization so far!rylie's momhttp://www.blogger.com/profile/06245477380127502409noreply@blogger.com0tag:blogger.com,1999:blog-2965840000209320504.post-68791104575139681842010-09-10T10:57:00.001-07:002010-09-10T11:02:30.140-07:00Happy Birthday Karlie12 Years ago today I became a Mom! I'm so thankful for my beautiful daughter, the sweetest girl ever born. Love You Karlie! Happy Birthday!<br /><br /><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhe0QJpoD2cpBSht7AtZqNzlbrveXZspxSjWJOcYMeggYKdTPBwySxt-6sQ07L3NHewgZe7IjftVhzNfJmgV80iy4rWRXHyCEHWfyCtLoaueCfXZdmV5drYKZ928gWvTWFGxHShyphenhyphenkwHcxM7/s1600/38596_146038295422596_100000492793219_365421_4745413_n.jpg"><img style="display:block; margin:0px auto 10px; text-align:center;cursor:pointer; cursor:hand;width: 400px; height: 300px;" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhe0QJpoD2cpBSht7AtZqNzlbrveXZspxSjWJOcYMeggYKdTPBwySxt-6sQ07L3NHewgZe7IjftVhzNfJmgV80iy4rWRXHyCEHWfyCtLoaueCfXZdmV5drYKZ928gWvTWFGxHShyphenhyphenkwHcxM7/s400/38596_146038295422596_100000492793219_365421_4745413_n.jpg" border="0" alt=""id="BLOGGER_PHOTO_ID_5515345908199091426" /></a><br /><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjwoQ7ID-qaswCgZswuRBfBPA6kqdvcxqu-QnRdesFqFt3QW7PZXTrVQlh2c7C83WZ_zV13fOaYrCSfYHayQj9rN_UmBBhWhXeiiF2Rn9lHAoQkW8_xHZKmMECL56C1n2eeWxd_EYs46FT-/s1600/24994_109110902448669_100000492793219_181391_3290314_n.jpg"><img style="display:block; margin:0px auto 10px; text-align:center;cursor:pointer; cursor:hand;width: 400px; height: 300px;" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjwoQ7ID-qaswCgZswuRBfBPA6kqdvcxqu-QnRdesFqFt3QW7PZXTrVQlh2c7C83WZ_zV13fOaYrCSfYHayQj9rN_UmBBhWhXeiiF2Rn9lHAoQkW8_xHZKmMECL56C1n2eeWxd_EYs46FT-/s400/24994_109110902448669_100000492793219_181391_3290314_n.jpg" border="0" alt=""id="BLOGGER_PHOTO_ID_5515345902558783266" /></a><br /><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhJwVJqXePVqDdqFLOKVxIkePcftUUY9DHvBl7cemXgc9OryloSbGx4G10_AcCxnS_ugN8xIBParZi5VJP0u-X_scKYEyGxyDp97oDVk8wOcczopflm4aShcEJRnteyo97wxX50MkNnQx2R/s1600/18550_103511329675293_100000492793219_90738_5562912_n.jpg"><img style="display:block; margin:0px auto 10px; text-align:center;cursor:pointer; cursor:hand;width: 400px; height: 300px;" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhJwVJqXePVqDdqFLOKVxIkePcftUUY9DHvBl7cemXgc9OryloSbGx4G10_AcCxnS_ugN8xIBParZi5VJP0u-X_scKYEyGxyDp97oDVk8wOcczopflm4aShcEJRnteyo97wxX50MkNnQx2R/s400/18550_103511329675293_100000492793219_90738_5562912_n.jpg" border="0" alt=""id="BLOGGER_PHOTO_ID_5515345898530444674" /></a>rylie's momhttp://www.blogger.com/profile/06245477380127502409noreply@blogger.com2tag:blogger.com,1999:blog-2965840000209320504.post-86468695374050358652010-08-31T15:02:00.000-07:002010-08-31T15:11:15.378-07:00Some Updated Pictures of my Girls<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhoCtZpY0_5mrCRo9ufkjV4C5nxGtOB2cI0i0UPm5jTIFfhZBjW8nr69LjqPp9u0xffAUmY1kppOuEtiWcaYJPW00BxtE0Z9AnTgu70IXMSPKUS2VQf7Xq5X8wfls4olr5-yGdsMuBUhNg7/s1600/101_1477.JPG"><img style="display:block; margin:0px auto 10px; text-align:center;cursor:pointer; cursor:hand;width: 400px; height: 300px;" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhoCtZpY0_5mrCRo9ufkjV4C5nxGtOB2cI0i0UPm5jTIFfhZBjW8nr69LjqPp9u0xffAUmY1kppOuEtiWcaYJPW00BxtE0Z9AnTgu70IXMSPKUS2VQf7Xq5X8wfls4olr5-yGdsMuBUhNg7/s400/101_1477.JPG" border="0" alt=""id="BLOGGER_PHOTO_ID_5511699897037963362" /></a><br /><br /><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgghi0zPcuiCItdAqXS4MZLkTTcf1QjruRgiUbSoNeGH4qZZFrwkccsNmg6vqQ0I1LIHXtm975rID-2MqEHMrZZ_SqtlidYGRv2j70-MlcSXLp3xDlUrxzOXBFn8YG70yboUqB8yPtC_Beb/s1600/101_1467.JPG"><img style="display:block; margin:0px auto 10px; text-align:center;cursor:pointer; cursor:hand;width: 400px; height: 300px;" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgghi0zPcuiCItdAqXS4MZLkTTcf1QjruRgiUbSoNeGH4qZZFrwkccsNmg6vqQ0I1LIHXtm975rID-2MqEHMrZZ_SqtlidYGRv2j70-MlcSXLp3xDlUrxzOXBFn8YG70yboUqB8yPtC_Beb/s400/101_1467.JPG" border="0" alt=""id="BLOGGER_PHOTO_ID_5511699130895125426" /></a><br /><br /><br /><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhFR_mU1R64upj4Nenz1E9Dakftyp6hQ-T7bT3wOlvz9qiBmXe2U1Npt3t4IpNurH4oHszGMiP9BTrLWWIYFihleGy6s9MmPQioUigi_iPajm6dlVLORemtVbGrxHEDF0P3ynuoAE0tNEQe/s1600/38562_146038005422625_100000492793219_365420_4650406_n.jpg"><img style="display:block; margin:0px auto 10px; text-align:center;cursor:pointer; cursor:hand;width: 400px; height: 300px;" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhFR_mU1R64upj4Nenz1E9Dakftyp6hQ-T7bT3wOlvz9qiBmXe2U1Npt3t4IpNurH4oHszGMiP9BTrLWWIYFihleGy6s9MmPQioUigi_iPajm6dlVLORemtVbGrxHEDF0P3ynuoAE0tNEQe/s400/38562_146038005422625_100000492793219_365420_4650406_n.jpg" border="0" alt=""id="BLOGGER_PHOTO_ID_5511698639845186386" /></a>rylie's momhttp://www.blogger.com/profile/06245477380127502409noreply@blogger.com0tag:blogger.com,1999:blog-2965840000209320504.post-46691286118878285272010-08-31T14:53:00.000-07:002010-08-31T15:01:02.328-07:00Bethenny Frankel<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjNKqZrSml3-E0wIhVDNKsvMDUck-P4cVhUAwL7mhL4CLcMxRQht7SPsAyXYs2hTr0hghVmbeqFUMsJ0cAkWZXZg1oEF5NmOTlGAmExUOwcrKsOZLJAaeYxlwHZbh8GR6vfeMjQKcv69K6Y/s1600/100_1553.JPG"><img style="display:block; margin:0px auto 10px; text-align:center;cursor:pointer; cursor:hand;width: 400px; height: 300px;" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjNKqZrSml3-E0wIhVDNKsvMDUck-P4cVhUAwL7mhL4CLcMxRQht7SPsAyXYs2hTr0hghVmbeqFUMsJ0cAkWZXZg1oEF5NmOTlGAmExUOwcrKsOZLJAaeYxlwHZbh8GR6vfeMjQKcv69K6Y/s400/100_1553.JPG" border="0" alt=""id="BLOGGER_PHOTO_ID_5511696723846800146" /></a><br /><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhDziJeAAHKIaiZ5jIaocH9s8guWmlgI2Hp2i9oiPqla7VlRolESHxfnJ4QRt-cPplCg2MdAuET3jukFW8Y6PNCPvWnvyUL2ENkKUFsQ73UOKESJTjQwbdoGkFnZzssOzNwEdbxQjJGKz0v/s1600/100_1550.JPG"><img style="display:block; margin:0px auto 10px; text-align:center;cursor:pointer; cursor:hand;width: 400px; height: 300px;" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhDziJeAAHKIaiZ5jIaocH9s8guWmlgI2Hp2i9oiPqla7VlRolESHxfnJ4QRt-cPplCg2MdAuET3jukFW8Y6PNCPvWnvyUL2ENkKUFsQ73UOKESJTjQwbdoGkFnZzssOzNwEdbxQjJGKz0v/s400/100_1550.JPG" border="0" alt=""id="BLOGGER_PHOTO_ID_5511696713780419042" /></a><br /><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgriLKdrKVVIGi-tPkegCUCjxU7jo0pxQCIrR1cemWNnVisJLko03FmgEFVzNS-YWAeNlDGxn-VmQHpywbi6yFSADLCL83qCgk9dgVKEo0Y8F-QgmGdCW4c8ajDG6UpZyxyMfxv6etGpNVe/s1600/100_1549.JPG"><img style="display:block; margin:0px auto 10px; text-align:center;cursor:pointer; cursor:hand;width: 400px; height: 300px;" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgriLKdrKVVIGi-tPkegCUCjxU7jo0pxQCIrR1cemWNnVisJLko03FmgEFVzNS-YWAeNlDGxn-VmQHpywbi6yFSADLCL83qCgk9dgVKEo0Y8F-QgmGdCW4c8ajDG6UpZyxyMfxv6etGpNVe/s400/100_1549.JPG" border="0" alt=""id="BLOGGER_PHOTO_ID_5511696706897805250" /></a><br />One day this summer I stood in a line of 1600 people to meet <a href="http://www.bethenny.com/">Bethenny Frankel</a>. I was about number 50 in line so it wasn't bad. I only waited about 2 hours. My guilty pleasure is watching the Real Housewives! Ha Ha!rylie's momhttp://www.blogger.com/profile/06245477380127502409noreply@blogger.com0tag:blogger.com,1999:blog-2965840000209320504.post-58559584055665894292010-08-31T14:45:00.001-07:002010-08-31T14:53:23.379-07:00Herr's Factory<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEh6NQ7cOi6rd6pic8nGf001tYYkEl8M0vRY9OiYBJkIpuleo-fiCNkNPN0D9vziEKX2n3jnuoRJBiR1fzbJeHRW_diQS9NqMbcIWEfmIzJP0clopJF8T-u0bSs8dnAf1fL1QyTHvNmnSsY6/s1600/101_1498.JPG"><img style="display:block; margin:0px auto 10px; text-align:center;cursor:pointer; cursor:hand;width: 400px; height: 300px;" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEh6NQ7cOi6rd6pic8nGf001tYYkEl8M0vRY9OiYBJkIpuleo-fiCNkNPN0D9vziEKX2n3jnuoRJBiR1fzbJeHRW_diQS9NqMbcIWEfmIzJP0clopJF8T-u0bSs8dnAf1fL1QyTHvNmnSsY6/s400/101_1498.JPG" border="0" alt=""id="BLOGGER_PHOTO_ID_5511695327704415090" /></a><br /><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiNlWyQ8Nq30T4jkb-ealfN2Cq8tWwKVdCWJRbYqwGRJUMDYU9WefaIeOtQ8YiBwzOP5Norqi2OKeqkiZT9fdhV_anUSRo2-A-iQs2y0K8f9dBeXsYD8CRnVeZFxkJSohiNp2n0GFKeUwaV/s1600/101_1510.JPG"><img style="display:block; margin:0px auto 10px; text-align:center;cursor:pointer; cursor:hand;width: 400px; height: 300px;" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiNlWyQ8Nq30T4jkb-ealfN2Cq8tWwKVdCWJRbYqwGRJUMDYU9WefaIeOtQ8YiBwzOP5Norqi2OKeqkiZT9fdhV_anUSRo2-A-iQs2y0K8f9dBeXsYD8CRnVeZFxkJSohiNp2n0GFKeUwaV/s400/101_1510.JPG" border="0" alt=""id="BLOGGER_PHOTO_ID_5511694910346781890" /></a><br /><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgnaUmdRMb48GUCBcAXtYcaw7AgWdrAfK_hRpOjX_Fpw5ugJlr5w8kNT4_fnQLYeDc2Ig9MnGIozOPFBv65vsJHO2eeV4fqOzLU-dKU3-I_N0Vl7XcEwDHAUvTOCVjboERMVfuwfKvCBUBa/s1600/101_1514.JPG"><img style="display:block; margin:0px auto 10px; text-align:center;cursor:pointer; cursor:hand;width: 300px; height: 400px;" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgnaUmdRMb48GUCBcAXtYcaw7AgWdrAfK_hRpOjX_Fpw5ugJlr5w8kNT4_fnQLYeDc2Ig9MnGIozOPFBv65vsJHO2eeV4fqOzLU-dKU3-I_N0Vl7XcEwDHAUvTOCVjboERMVfuwfKvCBUBa/s400/101_1514.JPG" border="0" alt=""id="BLOGGER_PHOTO_ID_5511694534825891250" /></a>rylie's momhttp://www.blogger.com/profile/06245477380127502409noreply@blogger.com1tag:blogger.com,1999:blog-2965840000209320504.post-84119710415727523642010-06-02T07:38:00.000-07:002010-06-02T07:44:03.652-07:00The Life of A ChristianThis was one of the songs played at my Dad's funeral service. It sums up the life of a Christian. Beautiful.<object width="480" height="385"><param name="movie" value="http://www.youtube.com/v/PANiveIKVX0&hl=en_US&fs=1&"></param><param name="allowFullScreen" value="true"></param><param name="allowscriptaccess" value="always"></param><embed src="http://www.youtube.com/v/PANiveIKVX0&hl=en_US&fs=1&" type="application/x-shockwave-flash" allowscriptaccess="always" allowfullscreen="true" width="480" height="385"></embed></object>rylie's momhttp://www.blogger.com/profile/06245477380127502409noreply@blogger.com1tag:blogger.com,1999:blog-2965840000209320504.post-22389189953255107212010-05-27T08:37:00.000-07:002010-05-27T10:22:01.501-07:00Dad<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjc4rMRkYYmIXC-cYSL3fFKeHpuAmBa8RFnPh8pVGyB-wvPHILdQHAe0hd8pfGhp4VvZ56MFtq_T3Vc7t0-9uUmQY8FHg6LgTgvlvBYvB4NE4oIUUWxUMDu9mlGu2CuCPf8rKf0ifvy687w/s1600/5164_1076657601010_1363347818_30183782_7890018_n.jpg"><img style="display:block; margin:0px auto 10px; text-align:center;cursor:pointer; cursor:hand;width: 400px; height: 300px;" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjc4rMRkYYmIXC-cYSL3fFKeHpuAmBa8RFnPh8pVGyB-wvPHILdQHAe0hd8pfGhp4VvZ56MFtq_T3Vc7t0-9uUmQY8FHg6LgTgvlvBYvB4NE4oIUUWxUMDu9mlGu2CuCPf8rKf0ifvy687w/s400/5164_1076657601010_1363347818_30183782_7890018_n.jpg" border="0" alt=""id="BLOGGER_PHOTO_ID_5475978595253522098" /></a><br />My precious Dad passed away on Monday. There are no words to describe the pain my family and I feel and there are not enough words to describe the love we had for him.<br />My dad had such a big presence everywhere he went. He loved people. He would talk to anyone no matter where he went. He could instantly become a friend with a complete stranger. My two brothers and I were so close to him. We know how much he loved us for he always showed it. My mom and him were a beautiful couple. They had so many wonderful years together. They had so much in common. They loved the same foods, the shore, antiques, flowers etc. My parents showed me what true love is and how to endure life's difficulties together. It is because of my dad's faith that I know the Lord today. And I know the Lord will help us through this difficult time. My dad is now in the presence of Jesus, home in heaven and we know he is at peace.<br /><br />Please keep us in your prayers, my mom especially.rylie's momhttp://www.blogger.com/profile/06245477380127502409noreply@blogger.com2tag:blogger.com,1999:blog-2965840000209320504.post-72728082538714133632010-05-16T17:41:00.000-07:002010-05-18T12:27:12.015-07:00Well, Wadda Ya Know!Rylie had her orbital ultrasound on Thursday and now I'm more confused then ever. The ultrasound revealed that there is no fluid causing the swelling on her optic nerves. This is called <a href="http://www.familyeyemd.com/patient_ed_pdf/opticnerve%20rusen.pdf">Drusen</a> or false papilldema. True <a href="http://en.wikipedia.org/wiki/Papilledema">Papilldema</a> is what we've been dealing with all this time. In other words her optic nerves just have a swollen appearance because she was just born this way. It explains why the medicine has never worked to decrease the swelling. She was put through hell to be diagnosed with <a href="http://en.wikipedia.org/wiki/Idiopathic_intracranial_hypertension">Pseudotumor</a> and all along it was <a href="http://www.familyeyemd.com/patient_ed_pdf/opticnerve%20rusen.pdf">Drusen.</a> <br /><br />But it's still a little tricky and confusing. Why wasn't this ever detected by the ophthalmologist all these years? Well because Drusen becomes more visible to an ophthamologist as a child gets older. Maybe the medicine worked and that is why the ultrasound revealed no fluid. Doctor said that's possible, but not likely, because the optic nerves still appear swollen. Why when she had a spinal tap did it reveal a high opening pressure? Well that high number may just be Rylie's normal(because of Down syndrome). Not really convinced about that one. Drusen can still cause vision problems, but it's rare. Unlike Psuedotumor which is very vision threatening.<br /><br />Rylie was taken off the medicine and will go back to the doctor in 3 months. I'm just going to pray we go back to normal now and nothing else develops. Her vision has been fine throughout this whole ordeal.<br /><br />Listen Down syndrome Moms, If your ophthamologist ever looks into your kids eyes and sees swelling of the optic nerves, make sure the very first test ordered is an orbital ultrasound! Because the ophthalmologist said Drusen is very comman with kids who have Down syndrome.<br /><br />I'm still confused about everything! The good news is I think I finally learned how to spell ophthalmologist. Ha!<br /><br />ALSO, PLEASE CONTINUE TO PRAY FOR MY DAD. HE NEEDS MAJOR PRAYER. HE'S WAXING AND WANING. HE WILL PROBABLY NEED A FEEDING TUBE. WE NEED A MIRACLE. GOD CAN DO MIRACLES AND HE HEARS OUR PRAYERS!rylie's momhttp://www.blogger.com/profile/06245477380127502409noreply@blogger.com1tag:blogger.com,1999:blog-2965840000209320504.post-55875798471619571652010-05-10T17:35:00.000-07:002010-05-18T12:25:21.590-07:00Some Updates and a Prayer RequestRylie had her 4th ear tube surgery today. It went very well. We were there by 7:00 am and out by 8:00 am. Wow, that's quicker then a doctors appointment! She just bounced right up and has been running around playing all day.<br /><br />On Thursday we see the Neuro-ophthalmologist again. Before that appointment she will be getting an ultrasound on her eyes. She's doing really good and not showing any symptoms of the Pseudotumor, but hopefully we'll know more on Thursday.<br /><br />Two weeks ago she already had an appointment scheduled with the original ophthalmologist, so I took Rylie just because I was anxious to see if the medicine worked. There was still swelling on the optic nerves, but her vision seemed fine. If on Thursday there is still swelling, they're going to have to try a new medicine or something else. Thank God she is doing so well, or I would be going out of my mind waiting for medicine to work. <br /><br />Now, I have a prayer request. My dad had a pacemaker put in about three weeks ago. The recovery has been anything but smooth. There is so much going on with him. I wouldn't even know where to begin right now trying to explain it all. Some days are better then others and today was a better one. Please pray for him! He needs healing from his head to his toes. Thank you.rylie's momhttp://www.blogger.com/profile/06245477380127502409noreply@blogger.com0tag:blogger.com,1999:blog-2965840000209320504.post-40314290954228891272010-04-26T13:44:00.000-07:002010-04-26T14:02:22.825-07:00Michelle from Big Blueberry Eyes came up with a wonderful way to honor <a href="http://http://abandcsmom.blogspot.com/">Carly George's</a> life and show the George family that her Down syndrome community will never forget sweet Carly. Please go visit <a href="http://http://mdbeau.blogspot.com/2010/04/doing-something.html">here</a> to find out more info and how you can help.<br /><br />You can also visit <a href="http://http://jasmine-windmillsandtulips.blogspot.com/">here</a> to grab this button.<center><a href="http://abandcsmom.blogspot.com/"><img src="http://i669.photobucket.com/albums/vv54/jasminecucuta/sweetcarly.jpg" /></a></center><br /><br /><br />Thank you George family for sharing your sweet girl with us. We will never forget Carly and you will be in our prayers constantly.rylie's momhttp://www.blogger.com/profile/06245477380127502409noreply@blogger.com1tag:blogger.com,1999:blog-2965840000209320504.post-87238085890040561362010-04-14T18:21:00.000-07:002010-05-18T12:28:13.498-07:00UpdateRylie is under the care of a great doctor now. She still has the swelling...it could still take weeks for the medicine to work and another test will be run. She's doing good, but it's just a waiting game as long as she is not having symptoms....more later, I'm too tired to think straight.rylie's momhttp://www.blogger.com/profile/06245477380127502409noreply@blogger.com0tag:blogger.com,1999:blog-2965840000209320504.post-3675434081854749932010-04-09T17:26:00.000-07:002010-05-18T12:28:13.499-07:00UPDATEI took Rylie to the Neurologist yesterday. She looked into her eyes and said that there is still pressure there, because it looked blurry. The Neurologist doesn't have the equipment to really look into the eyes like the Opthamologist does. She only used one of those lights that the pediatrician uses, so she couldn't really tell much. She recommended seeing a Neuro-opthamologist and I told her we already have an appointment scheduled with one for next week. She said great and she knows the doctor we have an appointment with. She said he is the best! So next week we'll see him. The Neurologist increased her medication dosage. Maybe by next week all the swelling will be gone. That's what I'm praying for anyway. Rylie is doing great. She is perfect on the outside, I just don't know what's going on inside. I stopped researching Pseudotumor Cerebri online because it was freaking me out. Since she is not in any pain and still isn't showing any symptoms, I'm happy with that and looking forward to seeing the Neuro-opthamologist next week.rylie's momhttp://www.blogger.com/profile/06245477380127502409noreply@blogger.com2tag:blogger.com,1999:blog-2965840000209320504.post-69836532260951998392010-04-04T19:38:00.000-07:002010-04-04T19:39:56.498-07:00Wishing Everyone a Blessed Easter!<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjAZheavjLcnwr8BMj-qLrKBP41XfisaY0Za-GtRBnQxPGgxFMdQ0hcq0aYJrzaX2VCse9KD8w0vzGIscMmzup6NfFLk8l5Zj2qRowlsPdkHV3xKEWIqmQocKHqRjFbhtybUrfdNz2D6OLI/s1600/101_1086.JPG"><img style="display:block; margin:0px auto 10px; text-align:center;cursor:pointer; cursor:hand;width: 400px; height: 300px;" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjAZheavjLcnwr8BMj-qLrKBP41XfisaY0Za-GtRBnQxPGgxFMdQ0hcq0aYJrzaX2VCse9KD8w0vzGIscMmzup6NfFLk8l5Zj2qRowlsPdkHV3xKEWIqmQocKHqRjFbhtybUrfdNz2D6OLI/s400/101_1086.JPG" border="0" alt=""id="BLOGGER_PHOTO_ID_5456477579686435314" /></a>rylie's momhttp://www.blogger.com/profile/06245477380127502409noreply@blogger.com0